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Severe Pain

by MJohnston
(Canada)

I titled this entry severe pain because I feel that is all my life is wrapped around sometimes. I'm 25 years old, and have been living with this pain for 8 years now. I'm hoping this will help someone out there searching for a story involving severe or chronic symptoms associated with IBS.
It took me two years, so many doctors and test that required to put me out for in the hospital to be told that he wasn't completely sure what was wrong, just that there was inflammation found, and it was most likely IBS.
I don't know if anyone else feels this way, I've tried looking up story after story about what people go through with pain associated with IBS, and have found nothing similar, so if there is someone else out there with the same pain, please - Write about it!

I started getting this pain in my upper left side when I was 17. It started out as a twinge, to full out contracting pain within the upcoming months. Back than I have to say it still wasn't as bad as it is now a days. Most people talk about how embarressing it is to be out in public and they start to feel the discomforts of pain, and need to find the nearest washroom. For me it's much different. I've gotten to know how my digestion works just by where the pain is located. Sometimes it feels as if I can feel the entire process going through my bowels. I am guessing this is when I have inflammation.

What is embarressing is the crippling pain I get just before I have to use the washroom, or while I am going. It doesn't happen everytime, I take advantage of what I concider long period of time when I have no pain at all. Sometimes it last a week.. sometimes I get lucky and I can go three weeks without severe pain, discomfort is always a given.
I don't talk to people about what I go through, because being so young people don't take you seriously, and it surprised me to find out how uncomfortable people are around a person who is going through extreme pain. I got so well at hiding it from people. But the pain got worse, and came on more unexpected.
I am most afflicted right after I get up, so living with my boyfriend it got harder and harder to hide it. Very few people have seen me fall over in pain, but when it happens all I can do is hold my abdomin and cry. The contractions, or whatever my GI tract is doing is just so painful, it almost feels like I'm passing razor blades. As of lately I have a sneaking suspiction that I might be passing gullstones aswell. I don't have hemmroids, that was all cleared by my doctor. Its even difficult for me to try and explain how whenever my Gastrointestinal Tract starts to contract causes pain that radiates all the way through.

The worst thing I worry about is passing out from the pain on the toliet. I start to get really hot and nausious. Thats when I hold onto something and pray.
I can't drink juices of any kind now, nore soda's. Alcohol is out of the question, unless I have a full day off to recover. Tea, milk, and water is the only thing that doesn't worsen my condition.

I've never come across anyone talking about other symptoms associated with IBS, or read much about it, so I am wondering if anyone else out there may have arthritis type symptoms related to their IBS. I know malabsorbtion can cause this. My legs and hips are the most effected, making it difficult to walk for days, or more than a week. Thankfully it goes away with more rest I get, and if I stick to my weekely vitimin intake. If I didn't have my vitamins I wouldn't be able to function. I have a B-12, and Iron difficency.

Does anyone else deal with the same issues? I feel I need some kind of hope that I can get through this, and get better, because I am only 25, and I already feel like I am 50 on some days.

Comments for
Severe Pain

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Aug 12, 2010
OMG - I know what you are going thru
by: Anonymous

I almost cried when i read your sentence about feeling like razor blades because that is how i explain it to people. Nobody seems to understand that IBS is not just about unpreditable bowel movements but is unending, excruciating pain. Just yesterday I had an 'attack' and explained to me husband it was like razor blades in my left side, then an elephant standing on it! I can't walk, I breath thru it and double over like labor pains. It is frightening and it boggles my mind that that kind of pain doesn't show up as damage on the colon. I take pills for the pain, but they don'twork anymore. My heart goes out to you but in a way, you made me feel a little less alone because now I know I am not the only one. Thanks for posting ....I will keep trying to find ways to lessen the pain but for now, I have to live my life in fear of when the next stomach attack is going to happen..I am sure you relate.
Take care and I send a virtual hug out to you!

Apr 25, 2010
you are soo not alone!!
by: Louise hunter

I am the same i am only 26 years old and i feel so alone with it, i have really bad spasams and i am on tablets to try and control this. But no one wants to know it really sucks. I have had to change my diet and ended up with chronic dioreha just by eating pastry well i think it was the pastry cause it was only half an hour later after eating it that i was in sooooo much pain and had to go to the toilet. I am at the process were i don't know what to do about my job cause i am just not fit enough to do a 8 hour shift on my feet right now. Well take care and remember you aren't alone xx

Apr 14, 2010
pain day in and out
by: Anonymous

Your not alone!I have had severe IBS C since I was 17 and I wasn't diagnosed til I was 19. The symptoms are horrible. The cramps, constipation 99% of the time!, gas, headaches, insomnia, muscle pain, fullness,gas pains and cramps, bloating, pressure. A total nightmare. there are days that feel like I am going to black out it's that bad! No doctors will help or listen.I'm in my twenties now and can't hold down a job. I can't stand this hell.

Apr 12, 2010
pain
by: stella

I too have days when severe pain is the norm. It's agony, I can't bend, breathe, do up my jeans or walk without being crippled by spasms in my gut. I'm just coming out of a very painful two day attack. Very tender, sore and badly swollen. Back to the normal trips to the loo now and hopefully, my pregnant looking tummy with shrink a bit.

I'm trying peppermint oil at the moment, fingers crossed it works.

Apr 08, 2010
I am realy sorry
by: Siān@IBS-Life

This is appalling, and I am so sorry you are suffering this. It seems awful that you have seen doctors and yet it seems nothing can be done.

I think people do not like to write about IBS symptoms openly, because I get a *lot* of emails via the site where people tell of their distress and pain, but few public posts.

Yes, I do get severe pain at times, where I just curl up in a ball and clutch a hot water bottle and really do not know where to put myself. I was given Codeine Phosphate to take, although even that hardly touches it. And I do clutch at things in the toilet and sweat and cry when a bat spasm of IBS is on me.

Life seems to be a endured and not lived. I have found certain things that alleviate the symptoms a little and have recently read reports on organic cider vinegar containing some sort of enzyme strand called 'Mother' which is said to help both arthritis and IBS (as well as other things) so I am hoping to try that, (it has to be ordered via the internet from www.ostlerscidermill.co.uk although I am sure there are other places in the world that produce this. Slippery Elm Food's mucilage also soothes and Peppermint Oil capsules have helped, but I cannot afford this kind of thing all the time.

There are other people who suffer this, I am sure - it is a wonder that no-one you have seen in the medical profession has queried what may begin this inflammation within you, if it is any one thing, or begins literally when you start to digest. I am very sorry.

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