Constant pain 24-7 most of the time is making me so sad

by Kathleen
(England)

Right now I am layed in bed for the second day running, with heat pads, peppermint tea, ginger beer, pain killers, you name it I have tried it, medication from docs waste of time have no effect, tried different foods, but no matter what eat nothing makes any difference what so ever, I take a Fybergel drink every day, also a probotic drink, first had ibs about 8 yrs ago which lasted in cronic pain for approx 9 months , eventually pain did go , but then left with the bowel problems which we all know what that is all about, would not leave the house untill I had used toilet at least three times, eating out was a nightmare, unless toilet nearby, then end November last year three weeks after a sad bereavement it came back, first I thought water infection, because I have kidney failure, antibiotics did work that time, but it was not just the infection the dreaded ibs was back and was taking no prisoners, having same tests done as last time around,, scan and blood as been done nothing there, now awaiting the camera up the backside in a few weeks time, the pain is unbearable at times that I just want to sit and sob my heart out, I get it across waist belly button area, in the groin pelvis area which is like being in labour , think someone has their hands inside me twisting up all my insides, the griping pain is so intense I tence up, and other times stomach aches everywhere, backache which can go down to my legs, headaches, bowels now can be ibs-d or ibs-c, there have been a few days that I am pretty pain free then I get faulse hope that it has run it's course, but no it is always there just waiting round the corner, it makes me feel so sad and down, had a stroke four years ago, and this is just the cherry on top, just want to be normal, not loads of money but pain free and able to just get on with day to day living, even mothers day meal tomorrow as to be cancelled, I wish I had a magic wand, I would not wish ibs on my worst enemy

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Constant pain 24-7 most of the time is making me so sad

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May 21, 2012
To Anonymous
by: Sophia

I know how you feel and no I'm not feeling any better. It gets aggravating knowing none of my friends or family know what it feels like or can be there when I need to talk about it. I hope you can go out during the nice weather.

May 20, 2012
Update
by: Anonymous

Had the endoscopy done, everything normal there, still living with this awful pain, 6 months now and Still no end in sight, I just want to get on with my life, I never want to go anywhere or do anything, I just feel so low, will there ever be a ending to this pain which is relentless, I can only pray to god there is, Hope you Sophie are feeling better

Apr 09, 2012
I feel the same way!
by: Sophia

The stomach pains and back pains are what I feel as well and I'm only 18... Unlike you I do not have the frequent bowel movements. Mine are well dormant I guess you can say. But the pain makes me stay home from school and just ruins my day. There were plenty of times where I cried my eyes out because it was so unbearable. Sleeping is the only cure so far but even that doesn't last long enough. But I just wanted to say your not the only one.

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